Blessed and Blighted with Autism

The Guilted, Part 1 of Infinity

2011-11-24T06:35:00.001-06:00

When I was pregnant with Rogan, I was working 12-hour weekend nights as a charge nurse on an OB floor. I did this so that I would be able to stay home during the week with my daughter and my then-husband would stay home on the weekends. There were many a night where, looking for something to do or just anxious to take a peek at the miracle within me, I would pull out the ultrasound and scan my own belly. It amazed me to see that little creature and it always brought a little bit of joy to be able to connect with him by seeing him "face-to-face."
Fast forward about 5 years later to the autism diagnosis in 2006. I immersed myself into "information-seeking" mode. As my head swam and as emotions flooded me, I came across information like this, related to frequent ultrasound in pregnancy contributing to autism.

My heart sank even deeper than I thought possible. That information, combined with other environmental factors like getting several vaccines and receiving amalgam fillings when I was pregnant...made me realize that, even as a "medical professional" (or maybe because of...), I basically knew nothing about the causes or potentiating contributors of autism.

Here's the thing: They don't teach us about that in nursing school. Medical doctors don't learn about it in medical school or in their residency programs. The fact of the matter is, we're "taught" to think that people who believe in the harm that environmental factors can cause are quacks. We're "taught" to never doubt the benefits of vaccines and diagnostic medicine. We're "taught" to not ask questions and to just follow the rules. We're "taught" that most of the time, there really isn't shit we can do to prevent a condition or disease (other than vaccines, of course) and that most of the time, we are victims of genetics.

It has been every day experience and powerful connections with powerful parents that have taught me otherwise.

Do I wake up every day and pour over my sins as a pregnant, unknowing mother? Quite frankly, who's got time for that and what good would it do??? I prefer - most days anyway, because I am far from perfect - to embrace my son for the amazing kid that he is and for all that he has to offer.

I prefer to learn from my mistakes and move forward.

And I prefer to help others NOT make the same mistakes.

Bring it on.

Rogan's Solo Newspaper Project

2011-11-18T15:29:00.001-06:00

The Park Weekly - Issue 1

Clean Bill of Dental Health

2011-11-11T22:07:00.001-06:00

First time EVER! And Rogan was even complimented on his good brushing techniques! He's come a long way baby!

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Location:17th St S,Fargo,United States

100% Smart

2011-11-10T23:51:00.001-06:00

Landon, Rogan's little brother asked him: "Rogan, how do you always get 100% on your homework?"

Rogan replied matter-of-factly: "Because I am a very smart kid."

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Expression is Good

2011-11-08T19:15:00.001-06:00

Here is a series of texts between me and Rogan today. I couldn't help but smile.
Rogan: "I feel sad."
Me: "Why honey? Why do you feel sad?"

Several minutes passed, then I get this response:
"1. mr. tillmann gave me torture in class.
2. i can't get ANYTHING on my kindle.
3. landon is bawling over a ds game.
4. i don't have my money i want
5. it feels like a REALLY long week."

As it turned out, Mr. Tillmann gave the class a VERY challenging question. They're reading a book called "Number the Stars." They are to think about why the book has that title. He just got the assignment today but yet, "It's giving me NIGHTMARES, Mom!"

It's the not knowing part...that's what gives him the nightmares.

Dear Santa, Rogan-style

2011-11-05T21:45:00.000-05:00

Here it is, word-for-word...Rogan's letter to Santa this year. I can't make this stuff up folks.

P.S. Make sure you read it until the end. You'll be glad you did...

Dear SantaClaus,

How have youbeen? How was your summer? How about your wife? I’ve been extra good this year,and that why my list is sort of big. Please note the system for the videogames. If it’s all too much, make it easy on yourself… just send money. Howabout 10s and 20s?

Here I go…

· Transformers: Dark of the MoonBlu-Ray 3D Combo

· Mindflex Board Game

· DSi (trade for DS)

· Brain Age: Train Your Brain inMinutes a Day! (DS)

· New Super Mario Bros. DS (DS)

· Nintendogs (DS)

· Super Scribblenauts (DS)

· Kirby: Mass Attack (DS)

· Wii Sports Resort (Wii)

· Wii Fit Plus (Wii)

· Super Mario Galaxy (Wii)

· The Legend of Zelda: TwilightPrincess (Wii)

· Toy Story 3 (Xbox 360)

· The Simpsons Game (Xbox 360)

· Tron: Legacy Blu-Ray 3D Combo

· SpongeBob SquarePants: Battle forBikini Bottom (PS2)

· Pac-Man World 2 (PS2)

· SD Card

· Xbox 360 Hard Drive

· Diary of a Wimpy Kid 1-5 (red, blue,green, yellow, purple) paperback OR hardcover

· The Classic 102 Piece TinkertoyConstruction Set

· The Wimpy Kid Do-It-Yourself Book(brown) hardcover

Thanks for all the hard work you have done. I can’t with acapital C imagine a world without you. Until next Christmas… keep up the goodwork and don’t crack under pressure.

Sincerely,
Rogan

4H Halloween Night

2011-10-28T19:55:00.001-05:00

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Location:School Rd SW,Hutchinson,United States

Autism is Only a Part of Me

2011-10-22T10:20:00.001-05:00

Autism does not define me.

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Found!

2011-10-18T21:50:00.001-05:00

This picture was taken on July 14th, 2005. It was about 6 months before what I sometimes refer to as "D-Day" or the day of his autism diagnosis. Look at the pain on his face. He is completely lost in his own world. He was suffering...this was his "norm." Every. Single. Day.

This picture was taken on August 19th, 2011. It's been a long, hard haul...but I'd do it all over again in a heartbeat. Look at his smile. Look at his eyes. I have my boy back.

Hot dog mat press

2011-10-11T18:05:00.001-05:00

Rogan's wonderful Occupational Therapist topped off this "hot dog" with the following ingredients, of his choice: bubble gum, pretzels, Swiss cheese, corn flakes, and pickles!

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2011-10-01T18:29:00.001-05:00

Rogan's quote of the day: "Let's just relax and celebrate the honor of the day. Today is the best day so far of October 2011."

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A Valiant Voicemail

2011-09-26T21:45:00.005-05:00

Got this message on my phone today, it made me laugh out loud - literally.

"Mom, I was just wondering, since I got 102 on my Sciencetest, I got this Culver’s certificate for one free kids meal and I’m wonderingwhen the next time we could go to Culver’s!

Let me repeat that if you can’t hear it: I got 102 on myScience test, so I could dig into this prize box. I took the certificate forthe free Culver’s kids meal, so I’m wondering the next time we get to go toCulver’s so that I can use it!

Okay, bye!"

Grandpa Chuck

2011-09-25T21:10:00.001-05:00

Doing his Reading homework tonight, one of the questions was this: "Describe one of your grandparents. What makes him/her special?"

Rogan's answer: "My mom's dad (my grandpa) is special because he is very funny and loving and caring. He's special even though he likes the Packers."

He couldn't stop giggling. ; )

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Craft Fair

2011-09-17T17:29:00.000-05:00

Yesterday I made some "home interior" purchases at the 37th Annual Hutchinson Craft Fair. I was so excited that when I got home, I immediately got to work to find each decoration it's new "place." It wasn't anything major....no furniture, no painting, no extravagance at all. Just minor improvements to some bare space.

Rogan's older brother and sister came home from school and, without surprise, either didn't notice anything different or didn't care to comment.

Rogan got home about an hour after they did and he noticed right away: "Wow Mom, you did some refurnishing today! It looks very nice! In fact, this is the best our house have ever looked!"

Me, beaming: "Well, THANK YOU Rogan!"

Rogan: "Your Cooking Club friends are going to be VERY impressed when you have them over next month!"

What 10-year-old boy thinks like that??? I'm definitely winning. ;-)

Gratitude

2011-09-16T16:17:00.001-05:00

Oh how I love this boy.

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Spare time heart-to-heart

2011-09-13T20:45:00.000-05:00

Rogan: "So Mom, what do you like to do in your spare time?"

Me: "Well, I like to run, cook, scrapbook, read, and spend time with my kids - of course..."

Rogan: "Wow, that's an extensive list!"

Me, chuckling: "What about you, Rogan? What do you like to do in your spare time?"

Rogan: "Oh let's see...exercise, play video games, and be with you."

Rules by Rogan

2011-09-11T20:16:00.000-05:00

I came home from work and was enthusiastically greeted, as usual, by Rogan. He was excited as he announced that he had created his own set of rules today.

Here there are, in his own words of course, otherwise where would the entertainment be???

Don't talk to me before 8:00 in the morning on the weekends.
Always knock on my door before entering my room.
Don't makes me sit next to Bradee or Landon on spaghetti nights. Because we both know what a mess they each make!!!
Lastly and most importantly: Do NOT, under ANY circumstances WHATSOEVER, ever ask to borrow my underwear!!!

My Morpho-Man

2011-09-06T20:31:00.001-05:00

One thing you don't typically think of when you hear the word autism is creative. But, like another thing you don't think of - affectionate - many many kids on the spectrum have a surplus of this attribute.

I want to share an example...a very small example. Rogan is always working on some type of project. More often than not, he'll get bored before he finishes. This is one of those such projects, and it demonstrates just how his creativity flows!

The Adventures of Morpho-Man and Water Boy

The First Day of 5th Grade

2011-09-06T18:03:00.001-05:00

When I asked Rogan how his first day was, he summarized: "Quite simply Mom, Mr. Tillmann is THE. BEST. TEACHER!!!!"

That'll make a momma smile. : )

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Walking

2011-09-05T18:55:00.001-05:00

Rogan and I went for a walk tonight. As we passed by our neighbors house and he expressed some concern, "Oh no...THEY'RE outside." I wondered out loud why that matters.

"It's just not very manly to walk with your mom!"

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Location:School Rd NW,Hutchinson,United States

Going Out

2011-09-02T15:17:00.001-05:00

Rogan really didn't want me to leave on my first day off in 6 days. (I had an appointment.) But he dealt with it very well. This was waiting for me when I got home. ; )

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Open House

2011-08-31T16:59:00.001-05:00

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Location:Park Elementary

Back to...therapy

2011-08-17T05:34:00.000-05:00

We're starting therapy again to help with some of Rogan's struggles with gross motor skills and sensory difficulties.

During his evaluations, he was asked several times to perform a task (such as walking on a balance beam) with his hands on his hips. Each time he'd do what he was asked...minus putting his hands on his hips.

Therapist: "Okay, that was great! Now I'd like for you to do that same thing...only this time, put your hands on your hips."

Rogan: "Well, um..."

Therapist: "Is there something wrong?"

Rogan: "I really don't want to put my hands on my hips."

Therapist: "Ok Rogan...Is that too hard for you?"

Rogan: "It's just that when guys put their hands on their hips, it makes them look funny."

Both therapists handled themselves very well. I, on the other hand, had to turn away because I could NOT stifle my laugh!!!

Rogan then took a moment to look at me and then at the therapist. He conceded: "But since it is just the two of you, I suppose I could do that."

The Rogan Awards!

2011-08-08T20:08:00.000-05:00

Don't let anybody ever tell you that ASD kids are not creative and unimaginative! Here is a *secret* copy of the Awards show that Rogan is working on. He even has names of potential voters!

Rogan's Awards List, etc.

Grocery bonding

2011-07-24T21:42:00.000-05:00

Rogan and I made a very quick trip to the grocery store the other day.

Rogan: "This is a great mother-son bonding moment."
Me, beaming: "You are very right!"
Rogan: "Most kids my age are embarrassed to hang out with their mom. But not me!"

Who knew grocery shopping could make my heart melt!!!

Creativity abounds

2011-07-24T08:43:00.000-05:00

Rogan spends a lot of time on his computer. Good, bad, or indifferent, that's what he likes to do. Much of that time he writes...the kid amazes me with his perseverence and his ingenuity. Granted, he may get "ideas" from other sites, but he generally makes them into his own.
Below is an example of his work, a menu to one of his future restaurants he plans to open:

Burgers:

The Krabby Patty: A 100% prime beef half pound patty with ketchup, mustard, pickles, onions, lettuce, and American cheese toasted between two sesame seed buns. .99 (2.99 on Wednesday)

The Johnny B. Goodman Burger: A Krabby Patty with chili, coleslaw, pastrami, gravy, bacon and a 4 oz. hot dog. 3.57

The Ochoburger: An eight patty burger with American cheese, onions, and mustard. 1.99

Seward’s Folly: 2 16 oz. prime patties with 6 slices of American and Swiss, 12 pieces of bacon, a pound of ham, lettuce and tomato with Fat Sauce, a mixture of bacon, mayo, vinaigrette, and horseradish, plus a pound of fries and a giant onion. 7.99

The Eagle Burger: 10 8 oz. patties with 10 pieces of bacon and American cheese plus a giant pickle and 5 pounds of fries. 14.99

The Vortex Burger: A 1-pound prime patty with 6 pieces of bacon, 3 fried eggs, and 6 pieces of cheese between 2 grilled cheese sandwiches. 9.00

The Man Vs Food Burger: A half pound burger with bacon, salsa, fried eggs, bleu cheese and Bermuda onions. 3.02

The Garbage Burger: A double bacon cheeseburger with fries, coleslaw, onion rings, chili, mustard, and a hot dog. 5.00

The Apocalypse Now Burger: 4 half-pound patties topped with 2 slices of cheese, brisket, bacon ends, pork belly, and foi gras. 7.99 (4.00 on Friday)

The Thermonator Burger: A 3-pound patty topped with cheese, the fixings, bacon, chili, gravy, nacho cheese, chicken fingers, and a hot dog. 9.99

Hot Dogs:

The Roast Grill Dog: A hot dog topped with chili, mustard, and onions. .50

The Slim Shady Dog: A hot dog topped with ketchup, mustard, and macaroni & cheese. 1.00

The Goober Dog: A hot dog topped with fried egg and peanut butter. 1.50

The Daydream Dog: A hot dog topped with bacon, ketchup, mustard, and French fries. 2.00

The Monte Christo Dog: 2 hot dogs on a buttered bun with Swiss cheese and jelly. 2.50

The Works Dog: A hot dog with ketchup, mustard, relish, onions, chili, and nacho cheese. 3.00

The Cheese Cheese Cheese Dog: A hot dog covered in Cheez Whiz, nacho cheese, and American cheese. 3.50

The Carnivore Dog: A hot dog covered with pepperoni, Italian sausage, bacon, ground beef and pork. 4.00

The Veggie Dog: A tofu dog with lettuce, tomato, onion, pickle, cucumber, carrot, peppers, mushrooms, and Bar-B-Q Sauce. 4.50

The Knucklehead: A 16-inch bun covered with 5 quarter pound dogs, 3 pounds of chili, 8 fluid oz. of jalapeno nacho cheese, onions, tomato, pickles, tortilla strips and a pound of fries. 5.00

Sides:

Fries
Coleslaw
Chili
Potato
Bread
Salad
Noodles
Soup
Nuts
Onion Rings
Milkshakes

(All entrees served with 1919 root beer.)

Because I needed another reason to further pound the guilt into my heart...

2011-07-22T07:19:00.001-05:00

http://www.msnbc.msn.com/id/43634951/ns/health-mental_health/
Autism may be linked to antidepressant use
Risk may be environmental factors in the womb, not just genetics
By Julie Steenhuysen

updated 7/5/2011 8:30:01 AM ET

CHICAGO — Environmental factors may play a greater role in autism than previously thought, tipping the scale away from a strict focus on genetics, two studies suggest.

In one, a team at Stanford University compared cases of autism in identical and fraternal twins and found that fraternal twins -- who share only half of the same genes -- have unusually high rates of autism, suggesting that factors other than genetics may be triggering the disease.

In another, researchers at health insurer Kaiser Permanente found mothers of children with autism were twice as likely to have been prescribed a common antidepressant during the year before their pregnancy than mothers of healthy children.

Both studies were released Monday.

And the risk was even greater -- a threefold increase -- when the drug was taken in the first trimester of pregnancy.

The findings, released in the Archives of General Psychiatry, suggest that something in the birth environment -- drugs, chemicals or infections -- may be triggering autism in children who are already genetically predisposed to develop the disease.

"It has been well-established that genetic factors contribute to risk for autism," Clara Lajonchere, a study co-author and vice president of clinical programs for Autism Speaks, said in a statement.

"We now have strong evidence that, on top of genetic heritability, a shared prenatal environment may have a greater than previously realized role in the development of autism."

Autism is a spectrum of disorders ranging from a profound inability to communicate and mental retardation to relatively mild symptoms such as with Asperger's syndrome.

It affects one in every 150 children born today in the United States, or about 1 percent of the population.

Shared environment
The Stanford study involved 54 pairs of identical twins, who share 100 percent of the same genes, and 138 pairs of fraternal twins, who share half of the same genes.

In each pair, at least one of the twins had been diagnosed with autism.

The researchers found the chances of both children having autism spectrum disorder was higher among identical twins than among fraternal twins. But fraternal twins were much more likely to develop autism than studies of children in families where a sibling has autism.

According to the study, environmental factors common to twins explain about 55 percent of the cases of autism, and while genetic factors still play a role, it is much lower than seen in other studies of twins and autism.

"Environmental factors play a bigger role than previously thought," said Dr. Joachim Hallmayer of Stanford University School of Medicine in California, who led the study.

Recent studies have suggested genetics played the biggest role in autism, but his findings suggest something different, he said in a telephone interview.

"We have to study both the genetics and the environment," Hallmayer said. "If we look only at one side, I don't think that will lead us to the right answer."

Could it be antidepressants?
In a separate study in the same journal, a team led by Lisa Croen, director of the Autism Research Program at the Kaiser Permanente Division of Research in Oakland, California, looked to see whether antidepressants known as selective serotonin reuptake inhibitors, or SSRIs, contributed to autism risk.

The team studied nearly 300 children with autism and 1,500 randomly selected children and then checked their mothers' medical records.

Claymation Baby!!!

2011-07-12T17:38:00.000-05:00

Rogan is taking a Claymation class this summer...if you know Rogan at all, you know that this kind of thing is TOTALLY up his alley! Kudos to the instructor who initiated his own blog to summarize the events of the class! Here is excerpt one, from last week:
Claymation - Day 1: "Today was our first day of our Community Education Claymation class. We have 10 students and 1 teacher in our group.

After getting to know each other we started the class by talking about what we know about claymation and stop-motion movies.

We then spent a lot of time watching claymation and stop-motion movie clips. We talked about all of the aspects of these movies--use of clay and other materials, backdrops/sets, lighting, if the movement was smooth or choppy, etc..."

10 Commandments of Parenting an ASD Child, from the Autism Support Network

2011-07-10T07:42:00.000-05:00

The 10 Commandments of parenting a child with autism

Tyneise Seaborough

Read more: http://www.autismsupportnetwork.com/news/10-commandments-parenting-child-autism-393994938#ixzz1RhnmAwyT

1) You shall seek out therapists.
Specifically those in Occupational/Physical/Speech Therapy, and ABA) to help facilitate your child's skills and address various behavior problems. With the diagnosis of Autism are typically deficits in the areas of sensory processing, attention, grasping development, visual perceptual skills, social skills, communcation, and delayed motor skills. Keep in mind that each child is different though.

2) You shall find a support group.
Receiving the diagnosis of Autism, Aspergers, PDD, or any other diagnosis for your child can be overwhelming and the best thing that you can do is have support from those that have faced the same challenges and gain strength from one another.

3)You Shall engage in floor activities.
Several children have difficulty making eye contact and engaging with others and this is the perfect opportunity to get down where they are and enter into their world.

4) You Shall play with various weird textures.
Several children on the autism spectrum have difficulty with tactile sensitivities and often avoid various textures so begin to explore with various textures and welcome your child into a new world of sensory play. Purchase textured balls, introduce different washcloths/sponges/scrub brushes, fabrics, make crafts or playdough for scratch, bake, but explore.

5) You Shall establish at least two appropriate toys to play with.
Often children along the spectrum have odd attachments to items that open/close such as drawers/doors/ or elevators, & they enjoy flicking of light switches, so you need to introduce new toys and engage in play as we again seek to welcome them into our world.

6) You Shall limit your communication to 2-3 words phrases.
For the children that have limited vocabulary or are non- verbal, try to limit your communication to 2-3 word phrases such as "stand up, sit down, get the ball, lights off, bye toys" as they may not understand what you're saying because of their communication deficits.

7) You Shall include structure at home.
All children with Autism have a need of structure so begin to add timed play/work with the use of a timer, a visual schedule. So begin to use a timer for their play and transition them for periods of work, or to the table to eat or work on a craft. Structure decreases the anxiety of a situation and helps increase their success. This is the foundational block for daycare and school.

8) You Shall hold hands while walking in public places.
To demonstrate modeling in public places we need to ensure that children are learning how to walk in public places and down the halls and are not dashing down the hallways. So begin by standing at the door and saying "hold my hand" and begin today to implement this tiny foundational block for yielding success later in life.

9) You Shall establish a play date
Often parents express that their child has no friends, doesn't like people, are afraid of other children, or doesn't know how to interact with others. Parents it's now your time to find at least one play date in a church, park, mall, social events, etc. You have got to begin teaching your child how to engage with other peers (ask for objects, greet others, share toys, etc) this in turn will also become a building block for social skills in school and public places. Start now!

10) You Shall Believe That All Things are Possible and to Never Lose Hope.
Why? You have got to keep hoping and be your childs' best cheerleader. Anything is possible just never stop hoping!

Sponge Bob & Patrick Meet Rogan

2011-07-01T20:27:00.001-05:00

No words are needed for these photos...except perhaps that these two characters may have, in fact, made my son's DECADE! ;-)

Autism Camp Day 3

2011-06-29T18:46:00.000-05:00

Rock climbing today - and Rogan got this bandana for making it to the top. Standing with him are two of his counselors, Bethany and Dustin.

There's Always Another Loop

2011-06-29T16:22:00.000-05:00

Rogan's motto of the day: "Life is like a roller coaster. One minute you're on top of the world, the next minute you hit rock bottom."

He adds, "Right now, I'm more on the positive side of life. I use a scale of 1 - 100 & I'm at 74."

His happiness puts his momma at about 110. ; )

Autism Camp Day 2 as told by the Camper

2011-06-28T20:34:00.000-05:00

In Rogan's words, here's how his second day went:
"First we had music, just like yesterday. Then we had science...then we did this thing outside on the ropes. There was this log and we had to try to find a way for us all to get across. And in the end, everybody just ended up walking across. Then there was a white net and everybody had to figure out how to get across. I just used my arms and pushed myself on my back.

Then I had my delicious lunch.

Then we had OT. They had sensory balloons and water-colored paintings where you would write with white crayons and then it would reveal what you wrote.

Then we went on a nature walk. We saw some dancers that we thought were choreographed. My camp counselor, Dustin, said he just likes to 'free dance.' So then I showed him my moves and he told me that there must be a break-dancer in the family!

Then we went swimming and now here I am with you, enjoying the rest of this beautiful day!"

Here he is with another counselor, Heather:

Got Anxiety???

2011-06-28T17:28:00.000-05:00

A great article from The Autism Transformation:
http://www.autismtransformation.com/blog/my-child-is-anxious/

Anxiety can be debilitating for many individuals, especially those affected by autism and other neurodevelopmental conditions. Last month, I shared specific symptoms and changes in behavior to consider when determining whether or not your child or student is anxious. Now that you know what to look for in relation to anxiety symptoms, the next step is to understand ways in which you can help your child or student work through and reduce that anxiety.

Individuals cope with anxiety in many different ways; and as parents and teachers, it is important for us to guide our children without exacerbating the level of anxiety the child is experiencing. The most important person in helping someone work through anxiety is you. You, as the guide, can make the difference in increasing or decreasing anxiety for your child or student just by the way that you interact with them. Here are several suggestions and ideas for you to keep in mind when your child or student becomes anxious.

Stay calm. As a parent or teacher, it is important for you to act confidently as a guide to your child or student. If you become anxious when your child or student becomes anxious, then their anxiety level is going to continue to increase. As guides, it is our job to remain calm and composed during stressful situations. It is important for you to model for your child or student how to behave calmly and not overreact.
Be quiet. During moments of anxiety, adults tend to cope with the stress by talking more; however, this is not helpful in relation to reducing anxiety for children, especially those with neurodevelopmental disorders. Language can take quite a bit of effort to process; and if someone is already anxious, it is going to take even longer and may exacerbate the situation. By remaining calm and using as few words as possible, you can support your child or student in a more effective manner.
Slow down. When a child is anxious, he or she may not be able to process information as effectively as normal. For children with neurodevelopmental disorders, processing can be significantly altered when feelings of anxiety are present. It is important for you to remember that as the guide, you need to slow down everything that you are doing and saying in order to give the child time to process. If you tend to wait 5 seconds for a response during typical interactions, then wait 20 to 30 seconds during moments when anxiety is high.
Be observant. When a child’s level of anxiety is increased, there is some reason for the mental state change. As the guide, it is your job to take a step back, look at the situation, and try to figure out what may be causing the anxiety. Is there a transition approaching? Does the child need more sensory input? If you can pinpoint the source(s) of anxiety, then you will be better equipped to help the child cope.
Know your child or student. As individuals, we all have different forms of relaxation that we enjoy. For some it is reading a book, and for others it may be bouncing on a trampoline. Whatever the preferences are, it is important to know what strategies help your child or student to relax and calm down. This may include deep breathing, quiet time, physical activities, deep pressure, swinging, or being left alone for a period of time. These are just a few examples of different strategies that can be used with children during anxious time periods; however, it is important for you as the guide to know what will work best for him or her.

Over the past few months, we have examined what anxiety is, the symptoms of anxiety, and suggestions for helping individuals cope with anxiety. As the guide for our children and students, it is our job to recognize moments when they may be facing high levels of anxiety and then guide them through it. The way we react and guide our children or students during such times can make a big difference in their level of anxiety.

Another...

2011-06-28T08:17:00.011-05:00

I was making Rogan's lunch this morning for his second day of camp. He announced: "Another fabulous lunch for another fabulous day at camp!"

Here are some projects from his first day:

Autism Camp Day 1

2011-06-27T19:48:00.000-05:00

There was a time, not that long ago, where I didn't think this would be possible. Rogan, go to camp? Are you nuts??? How could he manage in a place where socialization - his biggest struggle - is an EXPECTATION? Who would be able to understand and SUPPORT his ever-present sensory needs? What kind of camp could possibly exist in which the counselors were able to ACCEPT (and embrace!) his anxiety issues and mood lability when things don't go just the way he plans -or if, God forbid, a change in the schedule occurs!

AUTISM CAMP!!! Courtesy of the Autism Society of Minnesota, or AuSM. P.S. I am running to raise money for autism with my charity of choice being AuSM. To donate, click here.

The first day of camp went off without a hitch. As we drove to the camp on the narrow dirt road, Rogan couldn't hide his smile. Nor could I. We pulled up to the camp site and, as expected, he initially didn't want to get out of the van. But after some very mild persuasion and the reassurance that there were kids here who felt EXACTLY the same way, he walked out with his head up high. We found his group, led by Dustin.

I said good-bye and Rogan didn't look back.

Autism?

2011-06-20T22:12:00.000-05:00

The other night Bradee & Rogan wanted to go bowling. Together. (Stranger things have happened...not many though!) We drove to the bowling alley and I went inside with them to pay.

Lo and behold, the lanes were full. (Bradee had called, at my suggestion, to ask if there was open bowling. The guy said "yes" but she hung up before he had a chance to finish telling her the specific hours of open bowling - which wasn't that night!)

Down but not out, we stopped in the arcade. Their money was burning holes in their pockets...I wasn't going to pay for the arcade, but they wanted to spend their own money anyway.

Turns out, Ms. Pacman was waiting for me there. (Yes, I am an 80's girl!) I played and the kids had to watch me, fascinated with the idea of their mom playing a video game and actually rocking it too! Bradee asked, "How are you so good at this?

As usual, Rogan doesn't miss a beat and responds, "It's just in her soul." (Yeah, my 80's soul!)

My real reason for this journal entry though is because of another event in the arcade. As we were playing, someone else came in. Much like Spidey senses, my autism senses were acutely aware that there was something different about him. He was delayed, but there was more than that. When he said something to no one in general, Rogan immediately started giggling. Rogan said, "You're funny!"

The young man (Matthew, I learned) liked Rogan's reaction and repeated himself. Never one to tire of a funny situation, Rogan laughed again. And again. And proceeded to watch Matthew play, giggling all the while.

When Ms. Pacman finally kicked my butt, I turned to Rogan and Matthew. There was a woman with Matthew who introduced herself as Matthew's guardian, and she told me Matthew had autism. We talked some, but mostly we watched Rogan and Matthew interact and laugh together, each unaware of the others' "disability."

When we walked outside, I asked Rogan if he liked Matthew. "Yeah, he was funny!" was his reply.

"Rogan, did you know he has autism?"

Rogan smiled. "Really? Like me?"

"Yep," I said. "Except he has a different kind of autism. He just can't do as much as you can. But you're both awesome!"

We didn't say anything else. We didn't need to because our smiles said it all.

Information please!

2011-06-19T19:31:00.001-05:00

Rogan's never been a big phone talker. In fact, it wasn't until really this last year that he would initiate a call to me.

He is in Bismarck right now, with his brothers and sister, staying with his Grandma & Grandpa for the next week. He's called me twice today. The most recent conversation went something like this:

Me: "Hello?"
Rogan: "Hi Mom."
Me: "Hi honey!"
Rogan: "How are you doing Mom?"
Me: "I'm fine. How are you?"
Rogan: "I'm good."
Me: (suspicious) "What's up?"
Rogan: "Oh nothing. I just decided I'm going to call you and check on you twice a day until...you work Thursday right? That means you're coming to get me on Friday."
Me: (smiling) "Yes, that's right."

I can't wait.

Things That Make You Go Hmmm

2011-06-17T08:15:00.000-05:00

Routine Screening for Autism Not Needed, Researchers Say

http://www.sciencedaily.com/releases/2011/06/110613014449.htm

ScienceDaily (June 13, 2011) — Proposals recommending routine screening of all children for autism gets a thumbs down from researchers at McMaster University.

In a study in the online edition of the journal Pediatrics, the researchers say there is "not enough sound evidence to support the implementation of a routine population-based screening program for autism."

Not only are there no good screening tools or effective treatments but there is no evidence yet that routine screening does more good than harm, said Dr. Jan Willem Gorter, a researcher in McMaster's CanChild Centre for Childhood Disability Research and associate professor of pediatrics.

Contrary to the McMaster researchers' findings, the American Academy of Pediatrics recently recommended that screening for autism be incorporated into routine practice, such as a child's regular physician check-up, regardless of whether a concern has been raised by the parents.

Autism, or the autism spectrum disorders (ASDs), is a group of serious neurodevelopmental disorder with major, life-altering implications. Its symptoms include differences and disabilities in many areas, including social, communication skills, fine and gross motor skills, and sometimes intellectual skills.

During the past three decades, the prevalence of autism has risen dramatically to 11 cases per 1,000 school-aged children from 0.8 cases per 1,000. Reasons for this increase vary: improved detection, changes in diagnosing the disorder or an actual increase. The disorder is more common in males with a 4:1 male-to-female ratio.

For the study, McMaster researchers conducted a literature search to assess the effectiveness of community screening programs for autism.

"None of the autism screening tests currently available has been shown to be able to fulfill the properties of accuracy, namely high sensitivity, high specificity, and high predictive value (proportion of patients with positive test results who are diagnosed correctly) in a population-wide screening program," researchers said.

Gorter said that unlike breast cancer screening, no autism screening programs have been studied in randomized controlled trials. "There is no solid evidence on which to base the recommendations of the American Academy of Pediatrics."

"None of the autism screening tests for the general population that we have today have proven accuracy," said Gorter. "That is, they aren't good enough to accurately detect children who have autism or to accurately detect those who don't."

Gorter said the study is a "call for action."

At this time, the researchers called community screening of all preschoolers premature. Alternatively, they recommend careful surveillance and assessment of all preschoolers who show signs of language, social and cognitive problems.

2011-06-10T17:43:00.001-05:00

Rogan told Landon: "You can't scare Mom. Mom's been through a lot of things & I haven't seen her scared once! If you're trying to scare her, well, good luck!"

Rogan the Director

2011-05-16T10:53:00.000-05:00

Gogh Gogh Rogan

2011-05-07T21:29:00.000-05:00

Rogan and his class learned about Vincent van Gogh's Impressionist art style. They learned that he used quick brush strokes, bright colors and thick paint to create one of his favorite subjects - the sunflower! Using these ideas, they created their own Impressionist sunflowers using oil pastels. Here's Rogan's...and what a long way he's come with his fine motor skills!

Buddy Bike Tandem

2011-04-18T12:26:00.000-05:00

Rogan is 10 years old and can't ride a bike. We've tried to teach him but he gets too frustrated...he struggles with his gross motor skills. We'd love something like this but obviously don't have an extra $1500 laying around.

If anyone knows of a decent used option, I'd love to hear about it!!!

Buddy Bike Buddy Bike Tandem - Michigan Bike Shops - Chicago Drive, Kentwood, and Holland Cycling & Fitness

It's NOT the Stork! (But that would make things a lot easier!)

2011-04-13T21:29:00.000-05:00

Today I attended a special session at Rogan's school held specifically for 4th graders about the "birds and the bees." A sex talk in 4th grade; can you believe that? Don't get me wrong, I APPLAUD the school for taking it on! However, it's because our kids are statistically going through puberty so much sooner now than in the past that these talks need to take place before they even turn 10!!! But that's a whole separate post...

The whole scenario reminds me of a separate Rogan story I don't think I've shared on my blog yet. It was a few years ago and his older sister Bradee was starting to ask where babies come from. She was about 7 or so...so Rogan was 5-ish and in Kindergarten. Bradee and I went and bought a book called, "It's NOT the Stork." We read it together the same day and that was enough for her. Plain & simple & to the point. I put the book away and figured that was the end of it.

About a week later, Rogan came up to me and said, "I know where babies come from!"

I smiled to myself and thought, "Suuuure honey. You go right on ahead thinking that babies come from under a cabbage leaf or from a stork." Out loud I said, "You do, huh?"

He said, matter-of-factly (which is a very common "tone" for kids with autism), "Yes, I do. When a man loves a woman very much, he puts his penis in her vagina (pronounced VAG-IN-A)..."

I stopped him right about there and when I was able to lift up my jaw and speak again, told him yes, he is right, that is how it happens. Then I had to stress how this is NOT a subject that is appropriate for playground conversation at school! YIKES! I did call the school and gave them a heads-up as well...those tentative phone calls from the other parents were something I could live without!

Rogan has been reading since before he was 3 years old, and I had forgotten about the book. But that's where he got it. He read the book, word for word. Needless to say, that book disappeared for awhile.

Autistic student is crowned prom king at Celebration High

2011-04-13T05:15:00.001-05:00

Autistic student is crowned prom king at Celebration High

Shane Thomas kept his fingers crossed. He hoped to hear his name.

Then, before anyone could announce this year's prom king at Celebration High School this past Saturday night, students erupted, chanting the senior's name.

Shane, who has autism, is the first person with special needs to be crowned at the school's prom.

"That's the most excited I've ever seen him," said Corey Green, the teen's school case manager. Shane repeatedly shouted, "I won," said Green, who crowned him.

It was the first time Shane, 18, had attended a "regular" prom, said his mother, Cheryl Thomas, of Kissimmee. "As a parent, you work so hard to get him a good education and have him accepted," she said. "What greater acceptance is there than getting your child voted by juniors and seniors as prom king?"

School paraprofessional Noemi Torres put on his sash at the prom — something she said she wouldn't miss for the world. She's worked with Shane for the past three years, helping him move into mainstream classrooms.

The students and teachers love him, Green said. "I don't think there are people on this campus that don't know him or his smile," he said.

"It's amazing how far he's come," Torres said.

Schools across the nation need to do more to promote inclusion, said Lauren Nelson, director for Best Buddies Central Florida, which Shane is involved in. The program provides support for people with disabilities and has 27 chapters at schools across the region.

"[This] speaks a lot about the school," she said.

Potato, Pota-toe

2011-04-12T18:08:00.000-05:00

Rogan told me that there will soon be a NEW Mr. Potato Head that wears PANTS! He realized flatly, "Yeah, he'll have one up on Lady Gaga."

Science News: Common Genetic Cause of Autism and Epilepsy Discovered

2011-04-10T06:45:00.000-05:00

ScienceDaily (Apr. 8, 2011) — Researchers from the CHUM Research Centre (CRCHUM) have identified a new gene that predisposes people to both autism and epilepsy.

Led by the neurologist Dr. Patrick Cossette, the research team found a severe mutation of the synapsin gene (SYN1) in all members of a large French-Canadian family suffering from epilepsy, including individuals also suffering from autism. This study also includes an analysis of two cohorts of individuals from Quebec, which made it possible to identify other mutations in the SYN1 gene among 1% and 3.5% of those suffering respectively from autism and epilepsy, while several carriers of the SYN1 mutation displayed symptoms of both disorders.

"The results show for the first time the role of the SYN1 gene in autism, in addition to epilepsy, and strengthen the hypothesis that a deregulation of the function of synapse because of this mutation is the cause of both diseases," notes Cossette, who is also a professor with the Faculty of Medicine at the Université de Montréal.

He adds that "until now, no other genetic study of humans has made this demonstration."

The different forms of autism are often genetic in origin and nearly a third of people with autism also suffer from epilepsy. The reason for this comorbidity is unknown. The synapsin gene plays are crucial role in the development of the membrane surrounding neurotransmitters, also referred to as synaptic vesicles. These neurotransmitters ensure communication between neurons. Although mutations in other genes involved in the development of synapses (the functional junction between two neurons) have previously been identified, this mechanism has never been proved in epilepsy in humans until the present study.

The results of the present study were published in the latest online edition of Human Molecular Genetics. They provide the key to a common cause of epilepsy and autism and will make it possible to gain a better understanding of the pathophysiology of these devastating diseases that seriously perturb brain development. They will also contribute to the development of new treatment strategies.
Facts and figures relating to autism and epilepsy in Canada
Invasive development disorders, also called the autism spectrum, include five diagnoses: autism, the most well known; RETT syndrome; childhood disintegrative disorder; Asperger syndrome; and unspecified pervasive developmental disorder. It is estimated that 60 to 70 people (including 10 children) out of every 10,000 people are affected by pervasive development disorders in Canada.
Epilepsy affects around 85 out 10,000 people in Canada. There are several kinds of epileptic seizures and syndromes.
About the study

SYN1 loss-of-function mutations in ASD and partial epilepsy cause impaired synaptic function. Anna Fassio, Lysanne Patry, Sonia Congia, Franco Onofi, Amélie Piton, Julie Gauthier, Davide Pozzi, Mirko Messa, Enrico Defranci, Manuela Fadda, Anna Corradi, Pietro Baldelli, Line Lapointe, Judith St-Onge, Caroline Meloche, Laurent Mottron, Flavia Valtorta, Dang Khoa Nguyen, Guy A. Rouleau, Fabio Benfenati. Human Molecular Genetics.

Story Source:
The above story is reprinted (with editorial adaptations by ScienceDaily staff) from materials provided by Centre hospitalier de l'Université de Montréal, via EurekAlert!, a service of AAAS.

Running 4 Rogan

2011-04-04T16:51:00.000-05:00

On May 21, I will be running in the Fargo Marathon. I will be participating as a member of Train 4 Autism, a non-profit organization dedicated to bringing together a community of athletes, physically-active, and socially conscious people who are committed to raising awareness and funds for research and treatment for those living with autism and their families.

My charity of choice is The Autism Society of Minnesota (AuSM), an organization of families, educators, care givers, and professionals committed to supporting individuals with autism spectrum disorders (ASD). AuSM has members throughout the state of Minnesota and the upper Midwest. They have summer camps that will allow me to volunteer and, at the same time, allow my son Rogan to participate in his very first camp experience...in a safe, supportive environment, exclusively for kids on the autism spectrum.

My goal is to raise $1000 by May 20. Thank you in advance for your time and support!

Follow This Link to visit my personal web page and help me in my efforts to support Train 4 Autism and The Autism Society of Minnesota!

NAA Never Give Up PSA

2011-04-03T08:09:00.000-05:00

April is Autism Awareness month. What do you know?

Poignant Pain

2011-03-29T17:41:00.000-05:00

Rogan: "Mom, I had a lot of pains today."

Me: "What kind of pains?"

Rogan: "The kind of pain you get when you're playing basketball in gym and someone drops the basketball and you trip over them and land on your chest. That kind of pain."

The Story of James Durbin

2011-03-24T20:51:00.000-05:00

James Durbin has given hope to many young people with autism and/or Tourette's, including my son Rogan. Regardless of whether he wins American Idol 2011 or not, James Durbin is #1 in my book! Go James!

Vote for Wobbly Towers!

2011-03-07T09:10:00.000-06:00

Please vote for Rogan's creation! Go to the Lego Club site (click here). Click on "Creative Corner" on one of the green legos on top. Scroll down, click on "Cool Creations" and type in "wobbly towers" under Creation Name on the left-hand side. You do have to create an account to vote but he has been WAITING (not so patiently) for one of his masterpieces to win! It would mean the world to him!

P.S. I asked him what he gets for votes...he said, "Nothing - just being proud that people vote for me!!!" ;-)

Panegyric plate

2011-02-24T14:23:00.000-06:00

A while back, Rogan's class members each wrote on paper plates, one for each student. They were to write a compliment about the student that each plate represented. This is Rogan's & I love it!

2011-02-19T07:20:00.000-06:00

Researchers reveal first autism candidate gene that demonstrates sensitivity to sex hormones

ScienceDaily (2011-02-17) -- Biochemists and molecular biologists have found that male and female sex hormones regulate expression of an important gene in neuronal cell culture through a mechanism that could explain not only higher levels of testosterone observed in some individuals with autism, but also why males have a higher incidence of autism than females. ... > read full article

Coat of Arms

2011-02-02T07:17:00.000-06:00

According to Rogan's art teacher,

"Students traveled back to the Middle Ages to learn about knights and noblewomen. They designed a coat of arms that describes their family through symbolic colors and pictures. They also came up with a family motto to describe their beliefs."

No Guts, No Glory? I guess that would be appropriate for a family motto.

Finding Success

2011-01-11T21:29:00.000-06:00

Well, Rogan didn't win the Geography Bee. But let me recount the series of texts between his FABULOUS para and me:

Received - "He went out on question 8...only 3 people left after he went out! He did a great job! He didn't melt down, he only pouted a little at the end...it was a HUGE success!"

Sent - "Yay Rogan! I am so proud of him! How many kids were in it?"

Received - "15 kids."

Sent - "I think we might have to have a little celebration...suggestions?"

Received - "We're strokin' the ole ego for him...we're skillfully asking him stuff...balloons?"

Sent - "Maybe balloons..."

Received - "Now when we came in the classroom he got a round of applause!!!"

Is that awesome or what??? By the way, I went with balloons and Rogan's choice of restaurant for dinner, which happened to be Country Kitchen. Congratulations, Rogan. You make me so proud!!!

Geography Bee

2011-01-10T21:45:00.000-06:00

Rogan is stressing tonight about the Geography Bee at school tomorrow. He was one of only two 4th graders to qualify! I asked him the other day if I could go. He thought about it for a couple seconds and responded, "No offense Mom, but I think I would do better without you there."

I was actually quite tickled with his honesty. It took a lot for him to be able to make a decision like that and he did it quite well.

So tomorrow is the day! I'm worried about performance anxiety, which can be huge for him. He came to me a few minutes ago to tell me he couldn't sleep because he couldn't stop thinking about it. I reassured him, telling him how brilliant he is and that he should just do his best and that will be enough. He offered, "I know! I can count sheep!" I told him that was a good idea if that worked for him and then his infamous quirky grin appeared. He replied, "Yes, it works Mom. But you know what's funny about sometimes when I count sheep? Every once in a while I goat will show up!"

Say a prayer for my little dude tomorrow at the Geography Bee!

"The Truth Will Come Out...

2011-01-07T18:18:00.000-06:00

...and parents need to do their homework and know they're alone."

2010-12-14T05:40:00.000-06:00

Toddlers with autism show improved social skills following targeted intervention

ScienceDaily (2010-12-09) -- Targeting the core social deficits of autism spectrum disorders (ASD) in early intervention programs yielded sustained improvements in social and communication skills even in very young children who have ASD, according to new research. ... > read full article

Virus = BRAT

2010-11-19T10:53:00.000-06:00

I got a call from Rogan's school nurse on Monday. He had diarrhea and I needed to go get him. We were walking to the car and he asked why it happened. "Well, it's probably just a little virus."

He managed to grin and replied, "The only virus I used to know about is a COMPUTER virus!" That made me chuckle, despite the fact that we were leaving the school with Rogan wearing an extra pair of pants from the school and his soiled jeans in a plastic bag.

Needless to say, the pooping continued at home. I'd hear, "Mooooooom, it's HAPPENING AGAIN!!!" I'd go in to find him covered in poop, not knowing what to do. Poor kid.

Eventually, when he got hungry, he asked what he could eat. "Well Rogan," I explained, "When people get sick like this, it's best to start out with what is called the BRAT diet."

He was all ears. (This kid is probably the BIGGEST "Biggest Loser" fan you will ever meet!) "What's the BRAT diet, Mom?"

I went on, "BRAT. B is for bananas, R is for rice, A is for applesauce, and T is for toast."

And that was enough for him. "I'll try a banana."

For dinner that night, while the rest of the kids ate ham and sweet potatoes, he chose rice, with not even so much as one little whine. He explained to his siblings, "I have to follow the BRAT diet until the virus is over."

Explaining nutrition facts to my little genius when he was sick made it much easier (and funner for him!) than just telling him what he could and couldn't have. Just the same, I'm glad it was short-lived! He got to have his ham the following night after his diarrhea had stopped for over a full day. "No more BRAT, Mom! Now I get REAL food again!"

Teen Says Football Helped Him Overcome Autism - Atlanta News Story - WGCL Atlanta

2010-11-15T08:24:00.000-06:00

Pay attention to the last sentence. This teen will go wherever his heart takes him - and succeed!

Teen Says Football Helped Him Overcome Autism - Atlanta News Story - WGCL Atlanta

Teen Says Football Helped Him Overcome Autism
Faith, Sport Prepared Autistic Teen For College
by Steve Kiggins, CBS Atlanta Reporter

POSTED: 11:30 pm EST November 14, 2010
UPDATED: 12:18 am EST November 15, 2010

SNELLVILLE, Ga. -- A teenager in Gwinnett County says his love for football and his faith helped him overcome his autism. Cortland Hale was diagnosed with autism when he was three years old. After following his brother’s footsteps into the game of football, Cortland says the comradery of the game is what helped him overcome his communication problems and his shyness.

“When I started playing it just changed the way, you know, it helped me socially and just really gave me confidence to say, I can do anything,” said Cortland.

Because of his faith and his passion for the game of football, Cortland said he overcame his obstacles and has been accepted into college.

“I was so excited that I got in, it’s such a blessing to me that I finally got in,” he said. “I wanted to show people that anything is possible and that you just keep fighting and you don’t know how far you’ll get in life if you keep fighting.”

Mary Todd who???

2010-11-14T19:22:00.027-06:00

We were on our way to the Mall of America for a family trip on Sunday. I brought my People crossword puzzles for the car ride. Lo and behold, I stumbled on the following question: "Successor for FDR"

Handy enough, Rogan was sitting behind me. I asked him, "Rogan, who was president after Franklin D. Roosevelt?"

Rogan didn't hesitate: "Harry S. Truman." Cool. :-)

About half an hour later, my brother Charlie texted me. Ironically, he said he was working on a crossword puzzle and asked if Rogan was with me. I texted back that he was. Charlie asked me to ask Rogan if he knew who Abraham Lincoln's wife was. Well, of course he did. "Sure Mom. It's Mary. Mary Todd Lincoln."

Forget the crossword cheat book. I'll just have Rogan with me!

SafeMinds: Don't Take The Risk #2 - 2010-2011 Flu Season

2010-11-09T05:46:00.000-06:00

2010-11-09T05:42:00.000-06:00

"The Darkness of the Night"

2010-10-20T09:41:00.000-05:00

Rogan: "I was thinking about what music would go good with this picture - and I thought it would be 'Thriller' by Michael Jackson. There's a ghost in the picture that is listening to Ozzy Osbourne music. And Ozzy Osbourne is sticking his hand out of the ground because he's dead but coming back to life!"

Still a WINNER!

2010-10-18T14:48:00.000-05:00

The day after Rogan found out that he didn't win a spot on the Student Council, he came running off the bus - bursting with excitement!

"Mom, guess what! I was the ONLY one in the whole school that guessed the artist of the painting!"

There was a contest at school in which the kids were to guess who the original painter was of a particular poster. Rogan guessed Vincent Van Gogh, and he won what he is holding in his hand - markers and paper. Not only did he win those items, but they announced his name over the intercom to announce it. So although Rogan will always be a winner to me, he now feels like a winner to himself too!

Prehistoric Self-Portrait

2010-10-08T08:40:00.000-05:00

Rogan and his classmates learned about the lives of prehistoric people. After some tips from their art teacher for accurately drawing the face, they drew themselves or a friend as a prehistoric caveperson. Judging by those ice blue eyes, I can only assume that Rogan drew himself!

A Top 10 list...

2010-10-07T12:17:00.000-05:00

Rogan didn't win a spot on the Student Council. Maybe he'll try again next year. Maybe by then the kids will realize what they're missing. In fact, in preparation for next year, here are my "Top 10 Reasons Why Rogan Would Be an Excellent Student Council Representative:

10. He would get to know you and your name. And all your friends' names. And your dog's name. And your sister's name in 5th grade. Oh, and your entire family's dates of birth.
9. He knows what you really want for your school. And will memorize it and recite it word for word. Along with the Emancipation Proclamation, if needed.
8. He can analyze exactly what you are eating for lunch. Every calorie and every gram of fat, protein, and carbohydrate. And then he could tell you what Jillian Michaels would make the contestants on the Biggest Loser do to work it off.
7. He would make time each and every day to recite and/or act out a scene from any of the "Diary of a Wimpy Kid" books or movie.
6. He could make a "Minute to Win It" event day, showing the school every single game that was ever played on the game show.
5. Chewing on items that are NOT food would be made an after-school sport.
4. Chess would be cool.
3. Each morning, he'd announce the Top 40 songs in pop music, along with the artist, album and how many votes each received. It would be followed by the weekly weather forecast.
2. Two words: SENSORY BREAKS!

And the #1 reason for electing Rogan to Student Council....

You'd get to see his amazing, quirky smile EVERY SINGLE DAY!

Keep up the hard work Rogan...I love you bunches!

Vote 4 Rogan

2010-10-05T21:15:00.001-05:00

Rogan is running for student council. He ran last year in Bismarck and the outcome wasn't good. But you can't say the kid doesn't have perseverance, which (for this post anyway) shouldn't be confused with perseveration. Check out his poster!

Except for the writing on the top, he did it all himself!

VOTE FOR ROGAN - Student Council for 4th grade, 2010-2011!

My Name is Rogan...

2010-10-04T19:58:00.000-05:00

On the first day of class, students introduced themselves to each other and the teacher by creating a project using interesting lettering and a drawing of a talent, interest or hobby. Here is Rogan's project:

You can become a fan of Rogan and his artwork by going to http://www.artsonia.com/. :-)

iPhone Changing Lives of Autistic Children - KFDA - NewsChannel 10 / Amarillo News, Weather, Sports

2010-09-23T10:13:00.000-05:00

iPhone Changing Lives of Autistic Children - KFDA - NewsChannel 10 / Amarillo News, Weather, Sports

Amarillo, Texas - It's being used to help kids with autism, kids who are behind on speech development, people with traumatic brain injuries and stroke victims.

New technology is helping revolutionize speech therapy. Apple's iPhone, iTouch and iPad are quickly gaining the attention of the medical community... Local speech pathologists say they've seen first hand the difference this new app can make in the lives of those who have trouble communicating what they're thinking.

WT's Associate Professor of Special Education says, "That's one of the defining characteristics of autism and other communication disabilities is communication problems. But the iPad, the iPhone the iPod all give them a way of communicating that can be personalized. It sets them free. It gives them a voice."

The app is designed to let them tell others what they're thinking... They touch the picture of what they want on the screen and the app says it out loud... Things like "I want to watch TV", "Hello. My name is Kristen" or "I'm hungry."

Speech Pathologist Donna Phillips says, "They have several very realistic voices that are male, female and children's voices and the child can then using touching that picture to communicate that message."

The most basic version of this app costs seven or eight dollars, but the most high-tech version runs around $200... Significantly less than the ten thousand dollar price tag that came with previously used large computer systems.

Status Quo

2010-09-20T08:59:00.000-05:00

No news is usually good news, and that's what I have. :-) The new school has been going well for Rogan - per Rogan and per the school's autism specialist. Yes, they have their OWN autism specialist and that makes me very happy. Rogan tells me that he gets to go the sensory room at least once a day. Yes, they have their OWN sensory room and that, too, makes me very happy!

We're working on scheduling his IEP and I intend to have him there to help with his own presentation. Remember last year? More to follow on that!

This is a picture of Rogan before school this morning. He tells me, "Mom, I really like this jacket." It's my sister Jackie's. She's over in Afghanistan so we're keeping her close. ;-)

America's Got Talent...2010

2010-09-15T21:11:00.000-05:00

Rogan is a huge reality TV buff. And "America's Got Talent" is probably his all-time fave. Tonight they announced the winner, Michael Grimm. As I sat in the kitchen, I could hear him shout a powerful "YES!" So imagine my surprise when he came out with huge tears in his eyes! But then came his infamous smile as he happily announced, "I'm so happy for Michael Grimm, these are tears of joy!"

Age of Autism book on sale now!

2010-09-14T20:39:00.001-05:00

http://myemail.constantcontact.com/Age-of-Autism-Book-On-Sale-Today-.html?soid=1101201531086&aid=vjJZ715H8Vs

Autism & Vaccines: Hannah Poling On Good Morning America

2010-09-10T13:57:00.000-05:00

Would you help someone with special needs?

2010-08-29T05:52:00.000-05:00

Are you sure about your answer? Remember, what you SAY you'd do is often different than what you'd actually do in that situation. It's not always easy to advocate, but it's the right thing to do.

Adventures in Autism: 1983 - 23 Doses of Vaccine, 2010 - 70 Doses of Vac...

2010-08-11T05:10:00.000-05:00

Wow. That's about all I'm gonna say about that.
Adventures in Autism: 1983 - 23 Doses of Vaccine, 2010 - 70 Doses of Vac...: "Someone came across the 1983 US recommended vaccine schedule on the CDC's web site: 23 doses of vaccine, birth to 18 years old. Today ou..."

Mixed emotions mean progress!

2010-08-06T05:57:00.003-05:00

Rogan has never had an issue showing affection toward me. After all, I am his mother! Tell that to any "neurotypical" kid as his own mom smooches him in front of his friends, right?!?

The other day at daycare, after I signed Rogan into his classroom for the day, I stepped inside to give him a hug goodbye. "Come over here, Mom," Rogan took my hand and led me into the hall and stepped a few feet to the side of the doorway.

I chuckled to myself, trying to hide my smile. I mused, "Why?"

He matter-of-factly replied, "Because I don't want to be embarrassed."

Once the coast was clear, he gave me a kiss and hug and headed back inside.

I had a bittersweet skip to my step as I walked back to my car. (Mostly sweet.) My little boy with autism was doing his best to fit in.

Treatment is right on beat | The Times Leader, Wilkes-Barre, PA

2010-08-06T05:57:00.000-05:00

Treatment is right on beat The Times Leader, Wilkes-Barre, PA

Wise BEYOND his years!

2010-07-21T19:59:00.005-05:00

This morning, Rogan was studiously reading the nutrition information on his Jimmy Dean Turkey & Egg English Muffin. He noted that it was chalk-full of protein! "However," he remarked, "you need much more protein than that when you're pregnant."

"Well," I quickly replied, "I don't need to worry about that any more!"

He grinned. "You're right, Mom. You are done having babies!"

"Yep," I told him. "And YOU, being a boy, will NEVER have to worry about that!"

"True," he said. "Except for someday when my WIFE and I decide to have babies."

I pondered that for a couple seconds then asked him, "Rogan, what kind of wife do you think you'll have some day?"

His insightful response was quick, but it will stick with me forever: "I don't know that but I do know I don't want to marry for looks or money. I just want to marry for love."

Can you say MANDATORY STERILIZATON???!?

2010-07-21T19:51:00.003-05:00

http://www.myfoxdfw.com/dpp/news/072110-911-call:-mom-didn%E2%80%99t-want-autistic-kids

911 Call: Mom Didn’t Want Autistic Kids
Published : Wednesday, 21 Jul 2010, 4:15 PM CDT
Adapted for Web by Tracy DeLatte, myFOXdfw.com

IRVING, Texas - The Irving mother who strangled her two children earlier this week told a 911 operator she did so because they were both autistic and she wanted normal children.

Police said 30-year-old Saiqa Akhter strangled 5-year-old Zain and 2-year-old Faraal.

She then called 911. Listen to the call.

She can be heard in an audio recording repeating, “I kill my both kids. They are died.”

Akhter also told the operator that she tried to make the children drink bathroom cleaner, but they wouldn’t swallow. So instead she wrapped wire around their necks until “they are no more.”

“I know the policeman come to pick me,” she said.

When the operator asked Akhter why she did it, she explained both her children were autistic.

“Both are autistic. I don’t want my kids to be like that. I want normal kids,” she said. “I don’t want my kids to be autistic. I kill both of them.”

Paramedics who arrived at Akhter’s apartment in the 3300 block of Esters Road Monday evening found the children blue and unconscious in a bedroom .

Zain was pronounced dead at the hospital. His little sister Faraal was taken off life support Wednesday morning.

Akhter now faces capital murder charges.

You can run...oh wait, you can't!

2010-07-20T08:41:00.005-05:00

We've been living in a one-bedroom apartment for 3 weeks now. One thing I've learned is that there is no where to escape the constant bickering between two brothers - one age 9 and having autism, the other age 5 (and 1/2!) - that have a love/hate relationship.

I was listening to them this morning, trying my hardest not to say anything - even more so, trying not to scream. Back and forth, back and forth, back and forth, until Rogan ultimately tried to end it on his terms by loudly asking, "Capiche?"

Silence.

Until his little brother quietly announced: "I don't get it."

Futuristic thinker

2010-07-20T08:39:00.002-05:00

This morning Rogan declared (remember, he's 9): "One day, when I grow up and have children, I'm going to name them Xavier and Amanda." So here it is, his reminder in writing.

SafeMinds - Autism Mercury Thimerosal - Research - New Scientific Evidence Liks Autism to Vaccines and Mercury

2010-07-17T06:19:00.000-05:00

SafeMinds - Autism Mercury Thimerosal - Research - New Scientific Evidence Liks Autism to Vaccines and Mercury

Sometimes the truth can hurt!

2010-06-16T05:28:00.006-05:00

Yesterday, I spent the day in Jamestown finalizing our state's autism plan with the other Governor-appointed Autism Task Force members. I didn't get home until 6pm.

Rogan and I are on our own until Thursday, where we will join the rest of the family in Minnesota. So after his mentor dropped him off, the two of us decided to go to Olive Garden for dinner.

Rogan and I enjoyed each other's company and chatted through dinner. It's always fun for me to hear him talk about his day, along with hearing about whatever factual tidbits he wants to share. He was also looking forward to watching "America's Got Talent" tonight.

As we left the restaurant, Rogan enthusiastically said, "Mom, seniors are funny!"

"What do you mean?" I asked.

"Those older people sitting by us were cracking jokes and laughing the whole time! They were so funny!" I hadn't even realized he was listening to other conversations, as there had been no indication of any distraction on his part.

I irrationally thought of my 40th birthday rapidly approaching next month. "Well, I'm glad you think so because you're momma will soon be a senior herself," I mused.

He affectionately patted my arm and somberly replied, "I know, Mom. I know."

2010-06-14T19:58:00.001-05:00

"Mom, I'm just so glad I'm not one of the 22 million Americans that have diabetes!" Can you say i-r-o-n-y?

Blessed and Blighted with Autism

The Guilted, Part 1 of Infinity

Rogan's Solo Newspaper Project

Clean Bill of Dental Health

100% Smart

Expression is Good

Dear Santa, Rogan-style

4H Halloween Night

Autism is Only a Part of Me

Found!

Hot dog mat press

A Valiant Voicemail

Grandpa Chuck

Craft Fair

Gratitude

Spare time heart-to-heart

Rules by Rogan

My Morpho-Man

The First Day of 5th Grade

Walking

Going Out

Open House

Back to...therapy

The Rogan Awards!

Grocery bonding

Creativity abounds

Because I needed another reason to further pound the guilt into my heart...

Claymation Baby!!!

10 Commandments of Parenting an ASD Child, from the Autism Support Network

Tyneise SeaboroughRead more: http://www.autismsupportnetwork.com/news/10-commandments-parenting-child-autism-393994938#ixzz1RhnmAwyT

Sponge Bob & Patrick Meet Rogan

Autism Camp Day 3

There's Always Another Loop

Autism Camp Day 2 as told by the Camper

Got Anxiety???

Another...

Autism Camp Day 1

Autism?

Information please!

Things That Make You Go Hmmm

Rogan the Director

Gogh Gogh Rogan

Buddy Bike Tandem

It's NOT the Stork! (But that would make things a lot easier!)

Autistic student is crowned prom king at Celebration High

Potato, Pota-toe

Science News: Common Genetic Cause of Autism and Epilepsy Discovered

Running 4 Rogan

NAA Never Give Up PSA

Poignant Pain

The Story of James Durbin

Vote for Wobbly Towers!

Panegyric plate

Coat of Arms

Finding Success

Geography Bee

"The Truth Will Come Out...

Virus = BRAT

Teen Says Football Helped Him Overcome Autism - Atlanta News Story - WGCL Atlanta

Mary Todd who???

SafeMinds: Don't Take The Risk #2 - 2010-2011 Flu Season

"The Darkness of the Night"

Still a WINNER!

Prehistoric Self-Portrait

A Top 10 list...

Vote 4 Rogan

My Name is Rogan...

iPhone Changing Lives of Autistic Children - KFDA - NewsChannel 10 / Amarillo News, Weather, Sports

Status Quo

America's Got Talent...2010

Age of Autism book on sale now!

Autism & Vaccines: Hannah Poling On Good Morning America

Would you help someone with special needs?

Adventures in Autism: 1983 - 23 Doses of Vaccine, 2010 - 70 Doses of Vac...

Mixed emotions mean progress!

Treatment is right on beat | The Times Leader, Wilkes-Barre, PA

Wise BEYOND his years!

Can you say MANDATORY STERILIZATON???!?

You can run...oh wait, you can't!

Futuristic thinker

Tyneise Seaborough

Read more: http://www.autismsupportnetwork.com/news/10-commandments-parenting-child-autism-393994938#ixzz1RhnmAwyT